Rare Tumor Registry Research Program Workshop on Merkel Cell Carcinoma

Rare cancer tumor specialists from Dana Farber Cancer Institute, MD Anderson Cancer Center, the Lineberger Cancer Center, EMD Serono and the National Cancer Institute convened for a half-day workshop in Boston to align on general parameters for a rare cancer tumor registry on Project Data Sphere’s open access data platform.  Participants discussed lessons learned from past registries and selected Merkel Cell Carcinoma as the tumor type for a pilot registry.   This workshop served to inaugurate PDS’ Merkel Cell Carcinoma Task Force co-chaired by Dr. Michael K. Wong, MD Anderson Cancer Center, and Dr. David Miller, Mass General Hospital.