Symposium IX - Rare Tumor Registries

PDS Symposium IX on rare cancer registries that we are planning for Oct. 7, 2020, at the Omni Shoreham Hotel, Washington DC.

This annual symposia series has consistently elevated the conversation about research areas that are ripe for fresh attention in the realm of cancer clinical trials, often deriving major new thrusts from academia, industry as well as from our FDA.

Rare cancer registries hold potential to solve some of the most difficult challenges to advancing treatment of these rare cancers, which account for more than 20% of the cancers reported worldwide.

The symposium attempts to bring together multiple stakeholders representing all sides of this challenge: Practice in the clinic, Pharmaceutical research, Policy and regulatory science, and Patient advocacy to brainstorm the operational dynamics between the groups. 

Registries can impact these four areas in the following ways:

  • Refine clinical decision making and more effectively manage patient therapy.
  • Assist pharma in designing comparator arms efficiently, thus accelerating the drug development process.
  • Inform regulators who must decide whether to approve new medicines and how to use them in rare cancers.
  • Provide relief for the suffering patients with better treatment strategies. 

Symposium IX will consider how registries for rare tumors might address these existing shortcomings and drive improvements in patient care. More information will be coming soon.